“I have no SPM and I’m 19 years old. I’m working 2 jobs to support my parents because we’re a poor family.”

“I want to change people’s perspective that even 19-year olds can work too. I have no SPM and I’m 19 years old. I’m working 2 jobs to support my parents because we’re a poor family.

I was given the amanah (responsibility) to look after my family. What I earn with my salary, I guess it’s okay. But one job is not enough.

My mother does not know I’m working as a Foodpanda rider. Although I have another job at a shop selling handphones, I’m thinking of quitting it because I’m a little uncomfortable with previous cases where the staff in the shop had caused some problems.

The whole family from my mother’s side got a bad reputation because they knew I always go out at night. My mother did scold me but none of them knew I was working and therefore earning money.

They said, “Oh, Haiqal tu liar” (Oh, Haiqal is a wild one). But I’m not the type to show off what I was doing. Every time I received my salary, I’ll give my mother some money. “Nah, mak. Duit keras untuk mak” (Here, mom. It’s your pocket money).

During the day, my mother works as an author for lawmaking books. During the night, she bakes and sells cakes. My father is currently undergoing blood dialysis and he’s also working by himself. I also have an older brother who is OKU (Orang Kelainan Upaya/People with Different Abilities). But he’s working as a promoter.

I have to set an example for my other siblings, as told by my mother. All my aunties’ daughters looked upon my brother and I because we’re the only ones who are working. I also have three younger siblings. All of them are below the age of 14.

I think one of the most special gifts I gave to my parents were paying off for my mother’s car. I asked my father to keep it a secret because I wanted to volunteer and pay for the car instead. I paid for RM400 every month and once I thought ‘Oh, I should buy her a new car’. But for her, as long as the car holds up, she said she’ll continue using it.

My father is actually my stepfather. My biological father passed away when I was four years old. Now, I could only look at his old photos. Although my brother and I aren’t close with our stepfather, if there’s a problem, we could still sit down and discuss together. It’s just that my stepfather and I don’t really get along with each other at times.

If I want to marry someday, I hope to achieve two things. One, to have my own wealth and property and two, I want to give my family a more comfortable life to live.

For my 2020 resolution, I want to prove that young people can start working earlier in their lives. They see us 19, 20-year-old like those teenagers on Instagram having fun. But no, that’s untrue.

My friends once told me after I returned from work, “Jangan berlagak jadi manusia” (Don’t be so arrogant). I spent too much time working, instead of hanging out with them. But I knew if I join in, I would be like them.

I think people need to stop judging others from the outside. Focus more on what’s inside. Choose quality over quantity when it comes to choosing friends. I used to trust my friends more than my family, and that backfired at me.”

– Humans of Kuala Lumpur

Photostory by Mushamir Mustafa

“I guess my hardest decision I had to make was choosing either between sports or performing arts.”

“I nearly gave up on performing dances because I was pressured to do a lot of things by myself. But what made me feel proud performing in dance performances was receiving certificates and earning teachers’ recognition for all of your hard work.

One of the most embarrassing moments I ever experienced was when one of my friends blurted out ‘Eh, salah lah’ (oops, my mistake) when we were performing. We all wore an earpiece and a microphone, so the judges could hear us as well. In the end, we placed number 6 at the interschool Dance Competition.

I had been practising at Istana Budaya day and night, and it took up a lot of my money.

I guess my hardest decision I had to make was choosing either between sports or performing arts. I knew I had to choose one of them. I want to be able to do something relaxing and whenever I’m doing it, I need to feel somewhat at ease with it. Eventually, I chose performing arts over sports. I have never regretted my decision which was influenced by my passion.

There’s this prestigious school for performing arts and culture called ASWARA (Akademi Seni Budaya Dan Warisan Kebangsaan).

It has always been my dream to enter there, become a lecturer and study everything about performing arts and cultural performances so I can start my career in this field.

All my family have singing talents. My mother used to join me when I was dancing and singing in my room!

But now, she’s not working anymore. My father had an accident and he’s on paid medical leave. And next year, my grandmother is going to perform her umrah so, I definitely need to earn some money.

To me, if I have rezeki (sustenance), for my 2020 resolution I hope I can enter ASWARA.

I’m sure all of us have our own resolutions. If we managed to achieve our resolution, then alhamdulillah. If not, then you should just merge your new resolution together with previous ones.

But even then, we still won’t know what our future holds for us.”

– Humans of Kuala Lumpur

“Nurses put in the needles into the port under my skin to conduct chemotherapy.”

“My name is Staci Tan and I am 26 this year. I was 25 when I was diagnosed with Stage 3 colon cancer.

A few months into my job in a media agency as a media planner, I was sent for a medical check up where subsequently I was diagnosed.

The tumour was as big as my fist and it was removed alongside 27cm of my colon. I was in hospital for 10 days and took 6 weeks off work for recovery. This was in January 2016.

In March 2016, I started 12 cycles of chemotherapy every 2 weeks. I did not stop work because it was manageable.

Working actually helped me feel normal, because sitting at home just wasn’t doing me any good.

One week I would go for chemo and the second week I would go back to work.

The first week after chemo, for the first two days I would feel really tired and don’t feel like working but by the third day I actually felt like I could get the hang of it.

Work gave me a sense of normalcy and it helped me to recover.

This lasted till sept 2016. You will find a scar at my collarbone – this is the chemo port.

Nurses put in the needles into the port under my skin to conduct chemotherapy. I still have it with me till today; the doctor wants me to keep it up to five years, just in case.

Until I surgically remove it, I have to flush it at the hospital every 3 months.

I feel more normal every day, and sometimes forget about the cancer experiences I had to go through.

But I wouldn’t say I’ve moved on. It gets more infrequent but sometimes you just have a dilemma whether to push your limits or to hold back your ambitions.

I guess that’s the struggle for young cancer survivors. We’re too young to retire and have a lot of things that we still want to achieve but we’re afraid if pushing the limits will cause a relapse.

I find it kind of funny but I felt most blessed and lucky when I was diagnosed with cancer.

There were many things to be thankful about — being diagnosed before it spread further, having just enough insurance coverage for the treatment, meeting great doctors, having a good job, having supportive bosses and colleagues, family to take care of me, lovely friends to check on me and many more.

When my colleagues or friends hear of my cancer stories, they would say “you’re so strong”, and I always hesitate to reply because I think everyone has their own stories of being strong. Mine happens to be cancer.

For others, it may be depression, body image issue, or family affairs. We all have stories of strength in our own ways. Stay strong. You never know who you’re inspiring”.

– Humans of Kuala Lumpur went down and spoke with a trio of female cancer survivors from the National Cancer Society Malaysia. These are their stories.

Staci runs her own personal blog documenting her journey, visit it at https://kyension.com/category/sharestrength/

“So I had seven days to get my life together before my surgery – because it might spread and it is fatal.”

“My dream was to be a psychologist and to open a center and help underprivileged children develop socially and mentally. That’s why I studied developmental psychology all the way until PhD, until 3 years ago when I found out I had cancer. I was 27 years old.

Back then, I was a news anchor for ntv7, and hosted a successful web series and events, but as I was heading for a conference in China, I started getting diarrhea once a month which then became chronic for three weeks straight, whilst at full day events.

I went to see two doctors, and the medication I took didn’t help me at all. My dad then instructed me to go see a specialist so I went to see a gastroenterologist and he actually told me not to do a colonoscopy, but my dad insisted, and because of that we found a tumor in my colon.

So I had seven days to get my life together before my surgery – because it might spread and it is fatal.

When I woke up after the long procedure, I found that I had a colostomy bag, which is when your intestines are hanging out of your body and held in the bag, so your faeces and everything has to go through it. Turns out that the tumor was too close to the rectum.

They reversed the colostomy. I didn’t have to do chemo but the experience of the bag was a hard one. I couldn’t believe that it was happening.

The doctors couldn’t understand why either because I had no genetic history of it.

At the time I had a boyfriend. He actually cleans up the poo- since I don’t poo the normal way- and sometimes I can’t even control it and it’ll come out while he’s wiping it and he still did it.

He’s now my husband. He’s really supportive. We’ve been together about six years and when I had cancer it was our fourth year together.

But now my dream has changed, because I’ve had cancer. I came back to Malaysia to raise awareness. Now I want to help cancer patients and survivors – especially young ones. Young people with cancer are actually occurring more and more, so people need to be more aware of it.

It’s so unexpected for them and I want to help them move on with life.

A lot of young patients feel embarrassed about it, and never tell their friends. But they shouldn’t feel that way. They should take it as an experience, learn from it and move forward positively. I think that’s very important. After a while, I realized why should I be embarrassed about it? And that’s when I came out.

Just because they are young doesn’t mean they don’t face problems, and actually it’s because that they are young that they face more problems, as compared to elderly people who get cancer. It’s tougher for them to get a job, and they can never be covered by insurance ever again, so be prepared. It’s very important to get covered if you’re young financially. Early detection is important.

I know that when you are young, you wanna try and move on, you want to try and live a normal life. But I think you should try and understand and don’t keep it inside. If you wanna share or if you need support, come to our support groups”

– Humans of Kuala Lumpur went down and spoke with a trio of female cancer survivors from the National Cancer Society Malaysia. These are their stories.

Check out Mei Sze’s page at www.facebook.com/choomeisze/ and https://meisze.com/

“I can say that I have a new chance at life, which is a very lucky thing to have.”

“There was a fast growing tumor on the right side of my brain, and it was causing water retention in the brain which, if the tumor actually gets larger, will actually push the central alignment of the brain towards the left. When it covers the air passage of the brain, breathing will be difficult and I might lose my life because of that. This condition is called hydrocephalus and this form of cancer is called lymphoma. So the doctor insisted to take out the tumor and surgery was crucial and I needed to do it as soon as possible because it was life threatening.

So they had to dig in through the skull into my brain to remove the tumor and to drain the water out.

I then underwent my chemotherapy,radiation therapy, and I also did a stem cell transplant.

Thankfully, I am almost two years in remission.

And yes, my perspective on life changed.

I think we take things for granted usually, because if your life is normal, you won’t really appreciate everything in life. I’ve been through so many treatments, and the stem cells transplants were regenerating my life over and over again.

I can say that I have a new chance at life, which is a very lucky thing to have. I now treasure everything I come across, and I know how to appreciate the small things in life. Small things like having a perfect blood test report. Small things like these, like blood test results and my hair, growing, is happiness – something to be happy about. And I was not like this before.

When I was diagnosed I quit my job, because I was expecting another relapse.

I wish I hadn’t worked for so long. My daily routine was basically work, eat, sleep.

I changed my life, I changed to a slower paced life. I’m working on my own sweet time.

Work is not everything in life. If you are the workaholic type, do spend time with your family, because they should be the most important thing in your life. Work can’t replace them, whenever you fall sick, you rely on your family. Work can’t help much, except financially. Don’t neglect them because of work, it’s not worth it. Health is the other most important thing. I now work at my own pace, and focus more on my personal life”.

– Humans of Kuala Lumpur went down and spoke with a trio of female cancer survivors from the National Cancer Society Malaysia. These are their stories.

Someone with mental illness had once told me that, ‘You can choose to not be a friend, or not know what mental illness is all about. But you cannot discriminate me.’

“I grew up with a family member who is mentally ill, and have been taking the role of a caregiver for the last 20 to 30 years.

When I was really young, I didn’t know how to communicate with him because I did not understand his condition, which was schizophrenia. We seldom talked and often got frustrated with each other. But as I got older, I began to learn more about the different types of mental illness. I learned to speak to him the way he needs to be spoken to. That was when I finally understood exactly what he was trying to tell me.

Learning to communicate not only benefits him, but it also allows me to improve my communication skills with people of various backgrounds and my understanding of mental illness. Attending classes at the Malaysian Mental Health Association (MMHA) helps me deal with the people outside of our family better as I was able to explain to them on what is happening at home.

Mental illness is not something most of us talk about very often because it’s not something we are familiar with and we are afraid. Because of the stigma and stereotypes surrounding it. Those who have it refuse to see the doctor because of the fear of being labelled as problematic.

They’re actually very smart. In fact, they are even smarter than you and I. They have a lot of ideas. They think differently and can actually contribute more than we realise. I have personally seen this in a few people I know. I just hope there will be more employers who are willing to open doors for them. They will be more than happy to have the opportunities given to them, even if it’s just a few hours’ worth of work. Having a job and being able to achieve something actually helps to improve their mental conditions as well.

Someone with mental illness had once told me that, ‘You can choose to not be a friend, or not know what mental illness is all about. But you cannot discriminate me.’

What they really need is empathy, and not sympathy. They want you to understand how they really feel, just like how you would understand a person. Empathy involves understanding their feelings. Sympathy is looking down on them, thinking, “Aiyoh, you very ke lian (you’re so pitiful).”

When someone talks to you about having suicidal thoughts, you should really listen to them and not avoid the topic, no matter how much it scares you. It’s never easy for them to reveal themselves that way. When they tell you, they’re actually giving you a signal that they need help but they don’t know how to get one. They’re trying to get you to understand.

You know how sometimes we read the newspaper and go, “This person committed suicide by jumping off the building. He must have been crazy,” or, “He’s crazy. He’ll chop people up.” This is not true. The public needs to really understand why it happens. It happens because people with mental illness are not being treated right. They are left in the dark. They don’t know what to do. They need help. They can be in a much better position if we allow them to.”

 

“I want people to understand that those of us struggling with our mental health are not possessed”

My name is Fatin. I am 16 years old. In my previous school, there were students who would bully and tease me. I didn’t feel comfortable there, so my dad decided to send me to this school, which is specially catered for those who have vision impairment. He sent me here because he is friends with a few teachers from this school. This is also a boarding school, so I believe my dad wanted me to learn to be more independent.

There are 3 of us who are disabled in my family: my mom (physically), my dad (vision impairment), and I. I have a vision impairment: my left eye is blind, but my right eye is normal. When I was born, I did not open my eyes yet. After a month, I opened my eyes, but my mom noticed that my left eye was just white. My mom brought me to the hospital, and the doctor diagnosed me with retinoblastoma (eye cancer). When I was 2 months old, my doctor said we needed to operate out my left eye. So now, I wear a glass eye in my left eyesocket. Until now, I would go for a check-up every 6 months.

I wasn’t physically bullied, but I did receive verbal abuse. Due to my condition, there were people who did not want to befriend me. They threw around comments how I’m disabled, handicapped, I must be a burden to others, I’m different from “normal” people. In the past, the disabled were not given much recognition. Only in recent times, people are acknowledging the capability of the disabled.

There were times when I would respond back, asking why they wanted to be so mean. But most of the time, I would keep quiet. If I’m not too tired, I will try to meet up with my friends and tell them about my problems. Another option would be to visit the counsellor. I’m grateful that I have good friends, both from other schools and this current school as well. I have two good friends in this school, Fatiha and Hafizah.

If I could advise those who are being bullied, I would remind them to not fight back. If we fight back, we are the ones that will look dumb. For example, the bullies might say that we’re not smart. But we ourselves know that what they are saying is incorrect, so why must we fight back? Just let it be, don’t say anything, and don’t react to them. My mom used to tell me, “if we acting badly towards others, we are actually acting badly towards ourselves.” If we said that other people are dumb, we are the ones who will look uneducated.

In terms of my interests, I used to take part in sports during primary school. I played handball and netball. I also played futsal during secondary school, but I was only joining the club and not competing. Currently in this school, I take part in shotput. This year, I managed to achieve a silver medal at state level.

I am also active in ICT. There are ICT competitions for those who are disabled, and there are 4 categories: visual impairment, physical impairment, hearing impairment, and learning disability. I represent our school in the visual impairment category. When I first started taking part in ICT, I initially just tried out because many students were saying about how ICT was the best. Who knew, but thankfully I was able to represent the school at state level and win the gold medal. And in God’s will, I’m able to represent Malaysia for the Global IT Challenge. The Global IT Challenge will be held during 23-30 November this year in Busan, Korea. Training for this competition has already started. In the beginning, I felt that studying ICT was difficult, but with practice I slowly got the hang of it. If there is a will there is a way, it depends on whether we want it or not.

My ambition is to become a lawyer or a computer technician. I enjoy reading the news, things that are currently trending. Whenever I read about cases where justice was not found for the victim, it makes me question the situation.

I want to become a lawyer so that I can help obtain justice for the victims. I feel that many people in this world are suppressed. I want to be able to help, maybe firstly by representing those who are disabled. My family is my inspiration. I am very close to my family.

Both of my parents are disabled, and I see them being teased or bullied. I feel that this behaviour shouldn’t happen. All of us are humans: we are not more than others or less than others. Why must we then hate on each other? My teachers are also my inspiration. They are the ones who motivate me and increased my awareness towards what is happening in our world.

“If you want the rainbow, you have to deal with the rain.”

This year, my psychiatrist diagnosed me with Depression. During one of the days during the Raya holidays, I had a bad mental breakdown. I felt like I wanted to commit suicide, I felt like a burden to everyone. Thankfully I made my intentions known to my ICT teacher from the year before. I texted my teacher, saying, “I can’t take this anymore. I feel like I want to die.” My teacher replied, saying she wanted to take me to the doctor the next day.

If we counted the Raya holidays plus the days I didn’t attend school, I was already missing from school for a month. I told everything to the doctor, who then referred me to the UKM hospital. Now I attend counselling with a child psychiatrist at the hospital. My mood constantly changes. There are times when I’m happy, when I’m sad, when my emotions are all over the place, and sometimes when I don’t know what I’m feeling.

Initially when I told my parents about my diagnosis…. Who is able to accept that their child has such a condition? They were also thinking, “why suddenly? Why now?.” But after a while, they accepted it and they help take me to the hospital for my appointments. My doctor said my condition has since improved, but I do still struggle with low self-confidence.

I want people to understand that those of us struggling with our mental health are not possessed. It’s our thoughts and our minds playing tricks on us. Actually, people who are struggling with their mental health do not necessarily want to kill themselves. Instead, they want to kill something (or kill what they feel) that is inside them.

During my appointments, my doctor would tell me “if you want to feel sad or cry, let yourself do it.” If we express our emotions, we will be able to feel relieved after. You can allow yourself to feel sad, but please don’t do things like harming yourself or thinking of suicide. You can keep a diary to jot down what you are feeling, this can help. So that whenever we are mad or down, we won’t take our emotions out on others – but we can pour our emotions out in our diaries. The diary is able to act as a counsellor to us. Sometimes, there are emotions and problems only God is able to understand. If we feel sad, we can also talk to God about it because He can understand us. For me, I’m not really a writing diary kind of person – I prefer to draw instead. I like to draw views and cartoons.

For the upcoming year, I am still thinking if I want to get involved in sports again, or focus completely on my SPM. I am also considering if I’m able to study other languages. Currently I study the Malay and English language. If I have the chance, I would love to learn Japanese, Korean, Mandarin, and Thai language.

To anyone who is reading my story, I hope you remember to stay strong. You are not alone. If you feel down, please don’t do anything bad to yourself. I have already done many things that I regret. All of us have a function in this world, this is why God created us. Maybe not now, but one day, we will be able to know our function and place in this world. Don’t be affected by what others are saying, because this is your future – not the future of others.

I’m very thankful to all the teachers who have helped me, taught me, and introduced me to the world of ICT. For sports, I feel like that there are so many others who are more gifted. In the world of ICT, I’m thankful that I have found a place for me.

I also want to thank my teachers who taught me, from having zero knowledge to who I am today. If it was not for my teachers, I would not be able to achieve 4A 1B for my UPSR. Without them, I would not be able to be chosen as “Best Student” among the girls. I’m thankful to all my teachers: in kindergarten, primary school, and secondary school – all who encouraged me to learn and love the English language, helping me to obtain A’s for both my written and oral test. Without them, I would not be able to be where and who I am today.

Bahasa Malaysia

Nama saya Fatin. Saya berumur 16 tahun. Di sekolah lama saya, murid-murid akan cakap kata buruk dan mengejek saya. Saya kurang selesa di sekolah itu, itu sebablah ayah hantar saya ke sekolah ini kerana sekolah ini khas untuk mereka yang ada masalah pelihatan. Ayah saya hantar saya ke sini kerana beberapa cikgu adalah kawan ayah saya. Sekolah ini adalah sekolah asrama, jadi ayah saya juga hendak saya menjadi berdikari.

Dalam keluarga saya ada 3 orang OKU: saya, mak saya (segi fizikal), dan ayah saya (masalah pelihatan). Saya ada masalah pelihatan: sebelah mata kiri buta, mata kanan normal. Semasa saya dilahir, saya belum buka mata lagi. Selepas satu bulan, saya buka mata dan mak saya nampak mata kiri saya putih saja. Emak membawa saya ke hospital, dan doktor kata saya ada retinoblastoma (eye cancer). Semasa umur 2 bulan, doktor kata mata kiri saya mesti buang. So sekarang, saya pakai mata palsu. Sampai sekarang, setiap 6 bulan saya akan pergi check-up.

Sebab masalah saya, ada orang yang tidak mahu berkawan dengan saya. Mereka kata saya OKU, cacat, mesti menyusahkan orang, tak sama dengan orang lain – komen-komen macam ini. Dulu orang OKU tak ada iktiraf sangat. Baru-baru ini, orang nampak kelebihan orang OKU.

Saya tidak kena buli fizikal, tapi buli mental. Kadangkala saya akan balas balik, “kenapa nak jahat sangat?”. Selalunya, saya akan diam. Jika saya tak letih sangat, saya akan menjumpa kawan dan meluahkan masalah saya kepada mereka. Atau saya akan jumpa counsellor. Saya bersyukur kerana ada kawan baik di sekolah luar dan sekolah ini juga. Saya ada dua kawan baik di sekolah sini, Fatiha dan Hafizah.

Jika saya boleh memberi nasihat untuk orang yang dibuli, saya akan kata jangan lawan balik. Jika kami lawan balik, kami akan nampak bodoh. Contohnya, mereka cakap kau ni tak pandai. Tetapi kami tahu kata itu tak betul, jadi kerana kami mesti balas? Biarlah, diam saja, dan tak layan. Mak saya kata, “jika kami kata buruk kepada orang lain, kami cakap buruk ke diri sendiri”. Contohnya, jika kami cakap orang lain yang bodoh, tetapi betul-betulnya kami yang bodoh.

Waktu sekolah rendah, saya memang terlibat dalam sukan. Saya main bola baling dan bola jaring. Semasa sekolah menengah, saya main futsal. Tetapi saya tidak pergi bertanding, saya join kelab saja. Sekarang di sekolah ini, saya main sukan lontar peluru. Tahun ini saya mendapat silver medal di Kuala Lumpur untuk peringkat negeri.

Saya juga aktif dalam ICT. Pertandingan ICT ini ada 4 kategori: visual impairment, physical impairment, hearing impairment, and learning disability. Saya wakil untuk visual disability. Pada tahun lepas, saya mula cuba-cuba saja kerana ada ramai orang cakap ICT bestnya. Mana tahu, saya ada rezeki. Saya tak menjangka saya dapat menang dan pergi ke peringkat negeri kebangsaan. Kebangsaan menang juga, dapat gold. Tetapi tahun ini, Alhamdulillah, saya dapat mewakili Malaysia untuk pertandingan Global IT Challenge. Global IT Challenge akan diadakan pada 23-30 November 2019, di Busan, Korea. Training untuk pertandingan ini sudah mula. Mula-mula saya fikir belajar ICT macam susah, tetapi kerana saya terus belajar bersungguh-sungguh. If there is a will there is a way, it depends on whether we want it or not.

Cita-cita saya adalah untuk menjadi seorang peguam atau juruteknik komputer. Saya suka baca berita yang trending. Contohnya seperti membaca kes keadilan untuk victim yang tidak ditegakkan. Saya berfikir “kerana perlu macam itu?”. Saya rasa nak menjadi lawyer supaya saya boleh membantu mendapat keadilan untuk victim itu. Banyak orang di dunia ini, saya rasa mereka ditindas. Saya hendak tolong, mungkin saya boleh tolong dari segi orang OKU. Inspirasi saya adalah keluarga saya family. Saya sangat rapat dengan keluarga saya. Kedua-dua ibu bapa saya OKU, dan saya tengok mereka ditindas, atau orang lain mengejek mereka. Saya rasa sikap ini tak patut berlaku. Saya rasa manusia semua sama: tiada yang lebih, tiada yang kurang. Kenapa kita mesti benci antara satu sama lain? Cikgu-cikgu saya juga adalah inspirasi saya. Mereka yang membuat saya sedar dengan apa yang berlaku dalam dunia kita, dan juga memberi motivasi.

“Jika kami nak lihat pelangi, kami juga mesti ada hujan.”

Pada tahun ini, psychiatrist saya diagnose saya dengan depression. Ada sata hari semasa Raya tahun ini, saya ada mental breakdown yang teruk. Saya hampir nak bunuh diri, saya rasa saya menyusahkan orang lain. Nasib baiknya saya telah mesej cikgu ICT saya dari tahun lepas: “saya tak tahan lah cikgu, saya fikir saya nak mati.” Cikgu kata dia hendak membawa saya pergi ke doktor hari esok. Kira cuti raya dan masa saya tak pergi ke sekolah, saya dak tak pergi ke sekolah selama sebulan. Saya ceritikan semua yang saya merasa kepada doktor itu. Doktor merujuk saya ke Hospital UKM. Sekarang saya masih pergi kaunseling dengan doktor child psychiatrist di hospital itu. Perasaan saya selalu berubah. Kadangkala saya happy, kadangkala saya sedih, kadangkala emosi saya campur-campur dan saya tak tahu apa yang saya merasa.

Apabila saya memberitahu ibu-bapa saya… Siapa yang boleh terima anak mereka ada penyakit macam ini? Mereka pun berfikir, “Kenapa tiba-tiba, kenapa sekarang?.” Tetapi lama-lama pun, mereka boleh terima dan bantu membawa saya ke hospital untuk rawatan saya. Doktor kata keadaan saya baik sikit, tetapi confidence saya memang rendah.

Kami yang ada masalah kesihatan mental bukan syaitan. Fikiran kita dan otak kita sendiri yang bermain dengan kita. Sebenarnya, orang yang ada masalah kesihatan mental, mereka bukan selalu hendak bunuh diri sangat. Mereka bukan nak bunuh diri, tetapi mereka nak bunuh sesuatu yang mereka rasa dalam hati mereka.

Semasa rawatan, doktor saya selalu pesan kat saya “kalau awak nak sedih atau menangis, menangis saja.” Jika kami meluahkan perasaan kita, selepas itu kita boleh berasa lega. Kalau rasa sedih, bagi rasa sedih saja. Tetapi jangan lah buat benda macam self-harming, fikiran bunuh diri. Kamu boleh menyimpan satu diari, ini boleh membantu kamu. Sebab jika kita marah kita tidak akan lepaskan emosi kepada orang lain, kita boleh lauhkan emosi dalam diari. Diary ibarat kaunselor kita. Kadangkala orang lain tidak akan faham emosi kita, kecuali Tuhan. Jadi jika rasa sedih, meluahkan kepada Tuhan sebab Tuhan saja yang akan faham. Untuk saya, saya bukan seorang yang tulis diari sangat – saya lebih suka melukis. Saya suka lukis pemandangan atau kartun.

Untuk tahun hadapan, saya berfikir jika saya nak masuk sukan ke, atau saya fokus belajar untuk SPM saya. Saya juga boleh belajar bahasa lain. Sekarang saya belajar Bahasa Melayu dan Bahasa Inggeris. Jika saya ada peluang, saya hendak belajar bahasa Jepun, Korea, Cina, dan Thai.

Kepada sesiapa yang membaca cerita saya, stay strong. Anda tidak keseorangan. Kalau kamu rasa down, tolong jangan buat benda bodoh. Saya dah pernah lalui semua benda itu dan saya menyesal. Kita semua ada fungsi di dunia ini, ada sebab Tuhan ciptakan kita. Mungkin bukan sekarang, tetapi satu hari kami akan tahu fungsi kami dalam dunia ini. Jangan peduli kata-kata orang lain, sebab ini adalah masa depan kamu – bukan masa depan orang lain.

Saya sangat bersyukur kepada cikgu-cikgu saya yang menolong saya, mengajar saya, dan kenalkan saya kepada dunia ICT. Saya rasa sukan, banyak orang lebih hebat dari saya. Tetapi dalam ICT, saya rasa ada tempat untuk saya. Saya juga hendak cakap terima kasih kepada cikgu-cikgu saya yang mengajar saya dari tiada pengetahuan sehingga hari ini. Kalau bukan kerana cikgu saya, saya tidak akan dapat 4A 1B untuk UPSR. Tanpa mereka, saya tidak akan dipilih sebagai pelajar paling cermelang antara pelajar-pelajar perempuan. Saya berterima kasih kepada semua cikgu saya, sekolah tadika, sekolah rendah, sekolah menengah yang mempengaruhi minat saya belajar Bahasa Inggeris dan dapat membantu saya mendapat A untuk ujian lisan dan ujian tulis saya. Tanpa mereka, saya tidak akan sampai ke tahap ini.

In this school, we have students who even went on to Oxford.

There’s a boy I know, from the school I was at in Johor. He was blind from birth. He’s in Kelantan right now. He is very good in reciting the Quran, lovely voice, can sing, can do reflexology. Our school is a vocational school so he got his SKM (Malaysian Skills Certificate) in reflexology and he went back to Kelantan. In Kelantan, he got married to one of our former students – who is also fully blind. A few years later we got to know that they opened their own kedai runcit (retail store). His first job was doing reflexology, but he noticed that when people come for their appointment, they also wanted to buy things. He felt sympathy for those in the village and wanted to provide that resource. From this story, it struck me: these people are capable despite their physical disability – regardless if they are blind, deaf, or having a learning disability.

My hope is that people can give a chance to those who are blind (and also those categorised as blind but they are able to see). There are many ways we can help them. I want people to know that despite their disability, they are actually very intelligent people who are capable of doing what others are doing.

I am the Principal for this special needs school (Sekolah Menengah Kebangsaan Pendidikan Khas Setapak) and we have students who even went on to Oxford Universty.

We have students who are now lawyers, working in IT. We also have two students who were recently offered to be part of the Paralympics team. Once, a fully blind student came to my office, bringing his laptop. He then started his presentation and was telling me about his product that he was selling. I was sold!

So my passion now is in empowering our students so that they are able to make something of themselves rather than waiting for others to hand them something. I would like them to be able to do something for themselves, and in turn, help others.

If they are unable to continue with studying, my wish is to be able to equip them with skills. That’s why we are now trying to get resources to better our school. I’m looking for people to help us upgrade our music room, which actually, fun fact: used to be a toilet!

The music room used to be located at the highest floor of our school. Can you imagine these students needing to climb up and down the stairs just to practice, carrying all their equipment as well? Currently, we were able to move downstairs. But we still need money for all the gadgets e.g for sound-proofing, other musical instruments.

Music plays an important role for those who are blind. The blind has two heightened senses: their hearing and their sense of smell. If you go near them without making a sound, they will be able to identify you by your smell. And your voice is like music to them. Through your voice, they can tell if you’re pretty or ugly. So I often wonder, “what voice do I have?.”

Our students recently performed John Lennon’s “Imagine” during the launch of the Special Education International Conference, and our Education Minister felt moved by their performance. On 16th October 2019, they performed for the Festa Muzik event, where our Raja Permaisuri Agong came. We have a pool of talent actually: those who are good in ukulele, those who can sing really well. We have a female student who sang for the Permaisuri during a different event on 9th October 2019.

Other than music, another initiative we have is Kafe Matahati. Our tagline is “seeing through the heart, reach for excellence”. We thankfully have a parent who has funded us, as the area was in dire need of repair. However, I would like to do something more in this café so that students who are not as skilled in academics, are able to gain some work experience. The funny thing about Kafe Matahari is that it’s also a convenience store. If you want to buy pampers, it’s there. Even clothes, are cheaper than outside. Even if you want a blender or rice cooker, you can get those too!

We also have a small spa that is being operated in this school where you can get reflexology services, as we have a number of students who are skilled in that. That’s what we want to do: equip these students with skills so they can go on to become musicians, work in reflexology, work in canteens, restaurants.

Our school is also working with UKM to change our classrooms to become IT-friendly. We have teachers who are teaching our students the basic IT knowledge, as we have many students who are skilled in this. We signed a Letter of Intent with UKM, so hopefully by next year 10 October 2020 we will be able to launch this facility!

When you’re blind, your chances are more limited. People are more focused on the things that you cannot do, rather than the things you can do. People think “oh when you come to work with us, we have to provide this and that.” Yes, that may be true. But regardless of their disability, they still need money to live – like all of us. Contrary to popular belief, they don’t like to beg for money. They too want to be able to earn it, but it’s harder when they are not provided the reasonable accommodation to do so.

I think sometimes they feel like they are a burden – and this is what I want to change. We want to empower our students, to feel good about themselves. If you look at those overseas, despite being blind or deaf, they are very confident and vocal unlike us here. I would like to empower our students to become more vocal, confident, maybe training them in public speaking. When they go out into the world, I don’t want people saying that they can’t take them in as an employee because of their disability.

Bullying will only cause pain and heartache to other people.

My name is Qasrina, my friends call me “Qas”. I am 15 years old, originally from Terengganu. There are 8 children in the family, and I’m the fifth. When I was 6 months old, I had a cataract in my eye. During that time, I would always bump into objects. This caused my grandmother to also worry and ask why I kept knocking into objects. I went to see a doctor and I underwent a standard cataract surgery. I am able to see now, but I do wear glasses as I am near-sighted.

I was misunderstood and picked on before. When I was 5 years old, I studied in a normal kindergarten. This was where I was picked on. The teacher was the one who picked on me at the time, she would scold me a lot. As I was unable to see clearly, I was unable to read properly and I was scolded for that. The truth was she actually knew I was unable to see, but she forced me to read anyways. After that experience, I changed schools. I’m thankful I did, as I now have a lot of friends in my current school. I have not gotten picked on since that incident in kindergarten.

My hobby is travelling. If I have the money and resources, I hope to visit the Maldives. Within Malaysia, I have visited Melaka, Negeri Sembilan, Johor, and Penang. I enjoy visiting places near the seaside. Other than travelling, I enjoy riding my bike around.

In school, I enjoy studying Science, BM, English, and Art. When I was studying in my previous school, I used to dance. Genres of dance I would do are Indian dances or Hollywood dances. But I’ve not danced in a long time and I’m not dancing now, so my body is no longer used to it. I do play the sport Goalball. Participants compete in teams of three, and try to throw a ball that has bells embedded in it into the opponents’ goal.

My ambition is to be a kindergarten teacher in Early Childhood Education. In God’s will, I can become a teacher back in my hometown, where I come from. I want to become a teacher because I do enjoy being around kids. I am very close to my family, more so to my mother. During the Hari Raya holidays, I would help my mom in making cakes and pastries. I can cook soup, ayam masak merah, and ikan singgang.

I hope the people reading my story will remember to be kind to one another and not bully each other. Bullying will only cause pain and heartache to other people.

Bahasa Malaysia

Kawan-kawan panggil saya Qas. Saya berumur 15 tahun, dan berasal dari Terengganu. Saya adalah yang ke-lima daripada 8 adik-beradik. Waktu saya berumur 6 bulan, saya ada cataract dalam mata saya. Waktu itu saya selalu melanggar objek. Ini sampai nenek saya pun bertanya kenapa. Keluarga saya membawa saya ke doktor, dan saya dah buat operation. Sekarang saya boelh lihat, tetapi saya masih mesti pakai cermin mata kerana mata saya rabun jauh.

Waktu saya umur 5 tahun, saya belajar di sekolah tadika normal. Tetapi saya kena buli kat situ. Cikgu yang marah saya. Kerana saya tak nampak, so semasa baca buku tak jelas so dia marah. Sebenarnya dia tahu mata saya tak nampak, tetapi dia paksa say baca buku itu. Selepas itu, saya tukar ke sekolah lain. Saya bersyukur kerana ada banyak kawan-kawan di sekolah ini. Saya tidak dikena buli selepas sekolah tadika itu.

Hobi saya adalah travel. Kalau ada rezeki, saya hendak pergi ke Maldives. Dalam Malaysia, saya sudah pergi ke Melaka, Negeri Sembilan, Johor, Pulau Pinang. Saya suka pergi ke tempat yang ada pulau. Selain daripada travel, saya suka menunggang basikal.

Saya suka belajar subjek sains, BM, BI, Seni. Waktu saya belajar di sekolah sebelum sekolah ini, saya suka menari tarian India dan Hollywood. Tapi, sekarang saya tidak menari jadi badan saya sudah keras. Saya juga main sports Goalball. Bola itu kami main dengan satu loceng. Kami mesti tutup mata. Tempat goal ada dua, dan mesti ada 3 orang di hadapan kedua-dua gol itu

Cita-cita saya adalah untuk menjadi seorang cikgu tadika Pendidikan Awal Kanak-Kanak. Insyallah, saya boleh menjadi seorang cikgu di Terengganu, di mana saya berasal. Saya minat menjadi seorang cikgu kerana saya suka kanak-kanak. Saya rapat dengan keluarga, terutamanya dengan Mak saya. Semasa Hari Raya, saya akan menolong Mak saya membuat kek dan kuih. Saya boleh masak sup, ayam masak merah, dan ikan singgang.

Saya harap orang yang membaca cerita mengingat untuk jangan membuli orang lain kerana membuli akan membuat orang sakit hati.

I do face an eyesight problem – but I am still able to hear, to speak, to walk

My name is Khoo Song Yin. I am 16 years old. I’m the second among the four of us kids in the family. In my family, my younger brother and I have problems with our vision. I’ve had this problem with my eyesight since birth. But I still am able to see a little bit, while my younger brother is completely blind.

If something or someone is nearby me, I am able to see them. If they or the object is too far away, I’m unable to see it. I can see bigger things, but I can’t pick out smaller objects. I can see people if they are near me in distance, but I recognise people more from their voices.

I still remember when I went to the hospital to ask about my eyes. The doctor told me that as I was born like this, there wasn’t really a solution. I was unable to undergo any operation as the cornea of my eyes were quite thin. This just happened in October of this year. During that time, I felt very down. I couldn’t accept it in the beginning, did I really have to live like this?

But after a while I told myself, “it’s okay, I must still want to succeed.” I am only facing problems with my eyesight. There are other people in this world who are going through worse: physical disabilities, being deaf, being mute – they are going through things that are much more difficult than me. I do face an eyesight problem – but I am still able to hear, to speak, to walk. I feel that I should be grateful for what I do have.

I’m very close to my brothers and sisters. We usually play the computer, listen to music, and read online novels together. In our laptop, we have a screen reader that helps us to read these novels. We’ve only been using the laptop for 2-3 years, so it was completely alien to us in the beginning. When we first tried to use it, we didn’t know how to – I found it funny how we kept pressing random buttons.

If I am able to get my eyesight back, I wish to travel the world! I would love to go to Taiwan, China, Japan – to all the countries all over the world! But if I only had 5 seconds to have a glimpse of one thing, I would choose to see my mother. I would love to see her face.

I have been bullied before. During the first night staying in this school’s hostel, I don’t know why but the other students were throwing clothes pins on my bed. They also threw papers, rubbish, hangers too. If the paper hit my body, I would just place it back down on the floor. I wouldn’t fight back, I just kept quiet. Although it did hurt me, I do also forget things easily.

Honestly, I don’t think I needed to fight back because if I fought back, they would bully me back. This is the way people work: if they do something once or twice and they don’t get the reaction they want – they get bored. After a while, they will eventually stop.

We still have good people in this world. When I was younger, I was standing in front of a shop while my mother was shopping. Someone came up to me and asked me why I was alone. They also asked where my mother was, and helped me to find her in the store. I was also given RM 10 by this person as charity. 

My ambition is to become a singer. I love to sing Chinese songs. If I could leave a legacy behind, I hope that people will remember me as someone who always gave hope to those around her.

If I can give one advice to anyone who is being bullied, I would tell them to forget what makes them sad, angry, or unsatisfied. Remember instead what makes you happy and grateful. Be grateful for what you already have, and don’t think about what you don’t have. Don’t think too much. Don’t give up!

Bahasa Malaysia

Nama saya Khoo Song Yin. Saya berumur 16 tahun. Saya yang ke-dua antara 4 adik-beradik dalam keluarga saya. Dalam keluarga saya, saya dan adik ke-tiga yang ada masalah pelihatan. Sejak saya dilahir, saya ada masalah pelihatan. Saya boleh nampak sedikit, tetapi adik saya tak boleh nampak langsung.

Jika sesuatu benda atau orang lebih dekat, saya boleh nampak. Tetapi jika terlalu jauh, saya tak boleh nampak. Saya boleh lihat objek yang lebih besar, tetapi bukan objek yang kecil. Saya boleh nampak orang jika mereka dekat dengan saya, tetapi saya lebih ingat orang dari suara mereka.

Saya masih ingat apabila saya pergi ke hospital untuk mata saya. Doktor memberitahu saya bahawa saya tak boleh nak buat apa-apa tentang mata saya kerana ini adalah masalah sejak dari lahir. Saya pun tak boleh membuat operasi kerana kornea mata saya sangat nipis. Ini baru berlaku pada bulan ini (Oktober) saja. Pada masa itu, saya memang sedih. Mula-mula saya tak boleh terima, mesti saya hidup macam ini?

Tetapi kemudian saya memberitahu diri sendiri, “tak apa, saya mesti ingin berjaya.” Dalam dunia ini, saya menghadapi masalah pelihatan sahaja. Ada orang lain yang mengalami keadaan yang lebih teruk dari saya: masalah fizikal, pekak, bisu ke – keadaan mereka lebih kesian daripada saya. Saya ada masalah pelihatan – tetapi saya boleh dengar, boleh cakap, boleh jalan. Saya rasa saya sepatutnya bersyukur.

Saya sangat rapat dengan adik-beradik saya. Kami bersama-sama bermain komputer, mendengar muzik, baca novel di halaman web. Dalam laptop, kami ada ‘screen reader’ yang membantu kami membaca novel. Kami baru guna laptop sejak 2-3 tahun saja. Semasa kami baru cuba menggunakan laptop, kami tak tahu apa-apa – kelaka lah kami tekan butang ini dan butang itu.

Jika saya boleh dapat melihat semula, saya ingin pergi bercuti – di semua negara jika saya boleh! Saya nak pergi ke Taiwan, China, Japan – semua pun saya nak pergi! Tetapi jika saya ada 5 saat untuk melihat apa saja di dunia ini, saya akan milih Ibu saya. Jika saya boleh lihat, saya mahu melihat muka Ibu saya. 

Saya pernah dibuli. Semasa malam pertama saya tinggal di asrama sekolah ini, saya tak tahu kenapa murid-murid lain membuang penyepit baju kepada katil saya. Mereka juga membuang kertas, sampah, hanger baju juga. Jika kertas kena badan saya, saya hampir meletak kertas di atas lantai. Saya tidak akan melawan, saya senyap saja. Walaupun saya akan terasa, tetapi saya pun cepat boleh melupakan.

Sebenarnya, saya rasa tak perlu melawan kerana jika kami melawan, mereka akan membuli balik. Orang manusia macam ini: jika mereka membuat sesuatu satu atau dua kali dan tidak mendapat reaksi, mereka akan rasa bosan. Tak lama-lama, mereka akan berhenti.

Dalam dunia ini, kami masih ada orang yang baik. Semasa saya kecil lagi, saya berdiri di hadapan sebuah kedai semasa Ibu membeli-belah. Ada seorang datang dan bertanya saya kenapa saya seorang berdiri di situ dan di mana ibu saya. Dia pun menolong membawa saya masuk kedai untuk mencari Ibu saya. Dia juga memberi saya duit (RM 10). 

Cita-cita saya adalah untuk menjadi seorang penyanyi. Saya suka menyanyi lagu Cina. Saya harap orang lain akan mengingat saya sebagai seorang yang memberi semangat kepada orang lain.

Jika saya boleh memberi nasihat kepada orang lain yang dibuli, saya ingin memberitahu mereka untuk melupakan apa yang membuat kamu rasa sedih, marah, atau tak puas. Ingat saja apa yang membuat kamu merasa gembira dan bersyukur. Berasa bersyukur dengan apa yang kamu dapat, dan jangan berfikir tentang apa yang kamu tak dapat. Jangan fikir terlalu banyak. Jangan berputus asa!