(Part 2/2) “I want to bring awareness on stroke. Beside the physical problem, there’s also the psychological problem that people don’t see…”

(Part 2/2) “Lets say you are taking care of a stroke patient – up to a time you will feel start to feel stress, have temper, start to get angry and shout and without realizing what you are doing is giving stroke patients feel kecik hati (upset). Because with stroke medically we have the National Association of Stroke – that one they have covered. But on the psychological part no one has ever told a story on it. Stroke patients go through psychological problems, as well as the caretaker, that they have to be aware of. And taking care of stroke patients is not cheap.

“You should know about your stress level. If someone is stressed, you cannot reach the level of stress that makes your brain go haywire. It could be things, it could be people. Also heart disease and high blood pressure, you have to control it. Psychologically, you have lesser patience, you just feel like getting angry all the time, and the way you look at things is very thinly. You should just let things go, especially if you have stroke. And it goes to the caretaker as well, they have to be calm and come to their common sense as well. 

“I hope that I can be independent when it comes to certain things, that involves my daily life. I just want to be independent. Like now I need someone to send me to the toilet. That’s one of my wish, to do it on my own”. 

– Humans of Kuala Lumpur

Photostory by Mushamir Mustafa

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(This post was first published on May 18th 2016)

(1/2) “That morning I went to a bank in Ampang point, and suddenly I felt a headache, and nausea. I called my friend. He came, and straight away took me to Gleneagles Hospital…”

(1/2) “I was still ok, but the doctor put me in the ward. I could lie down, go to sleep, and talk. And then, suddenly, that night, I felt deaf. Whatever you said to me I could not hear. And then suddenly my whole body shook. I thought I was about to die. After that I went into a coma. For 9 days.

“Doctor said I was suffering from brain stem stroke, which means the blood vessel to the head is broken and there’s not enough blood going to my brain, and that 95{eb97150a49149dc6c9e8165e90f1c9129bb6172e02a598b4264a1fc329d7d5bc} of patients die. Its not the normal stroke effect where a person cannot use the left side of their body. The first year, both sides of my body cannot be used. I was like a vegetable. It was horrible. Now I still cannot walk, but I can use my right hand to feed me food. I wasn’t diabetic. The doctor said that it was because of stress. I used to do event management because I was in marketing,branding for quite some time. But I might not get the same job again, since I’ve been like this for 8 years already. 

“My advice is do regular checkups, for heart disease and high blood pressure so that you will know about your stress level. And maybe it sounds superstitious but be nice to people. And think of God more. Maybe that can help. Because with stroke, you don’t know if it’s gonna get you. It’s not like smoking where you know you might get a lung disease. Take care of your heart and mind. Stroke is a silent killer, and can hit anyone”. 

(Throughout the whole time I was speaking to him, only his right side of his face was moving – lips, cheeks and eyes). (I have also promised to him that I will be writing a news article to raise awareness on stroke patients who suffer psychologically, especially with caretakers who are also mentally abusing them without knowing it.) 

– Humans of Kuala Lumpur

Photostory by Mushamir Mustafa

Do you have a story? Let us know here: https://forms.gle/ht4HsvbxgSgcKS5h8

(This post was first published on May 11th 2016)